Tuesday, May 27, 2014

Retinoblastoma - Pipeline Review, H1 2014 - New Study Released

Retinoblastoma - Pipeline Review, H1 2014 - New Study Released
This report provides comprehensive information on the therapeutic development for Retinoblastoma, complete with comparative analysis at variouss stages, therapeutics assessment by drug target, mechanism of action (MoA), route of administration (RoA) and molecule type, along with latest updates, and featured news and press releases. It also reviews key players involved in the therapeutic development for Retinoblastoma and special features on late-stage and discontinued projects.


Monday, May 19, 2014

retinopathy of prematurity

Report documents cardiopulmonary arrest in premature infant after cyclomydril eyedrops
San Francisco, CA, April 2, 2014 – Eyedrops administered to infants as part of routine outpatient retinopathy of prematurity (ROP) screening can have ...
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TBI Newsletter - April 2014

Traumatic Brain Injury Resource Guide - April 2014

You're receiving this newsletter because you subscribed to it at the TBI Resource Guide.

April 2014


Centre for Neuro Skills®

A person with brain injury may have just a single opportunity for rehabilitation. The quality of life that follows treatment often depends on making the right placement decision. Centre for Neuro Skills (CNS) offers each client the highest quality rehabilitation possible. Call 1-800-922-4994 (California) and 1-800-554-5448 (Texas) for more information about our services.

Now you can also follow us on Twitter, Facebook, Youtube, Pinterest, Google+ and Linkedin!
Keep up to date with daily breaking TBI research and news, as well as CNS services, products, employment opportunities and educational videos. [#neuroskills]


TBI Resource Guide
The world's most extensive brain injury website
Newsletter subscribers: 8,902
The TBI Resource Guide is the internet's central source of information regarding traumatic brain injury. The TBI Resource Guide website consists of hundreds of pages of information, materials, education and resources about the brain, brain injury and rehabilitation for survivors, families and professionals.


CNS Mobile: Centre for Neuro Skills App

CNS Mobile, the OFFICIAL app for Centre for Neuro Skills (CNS), includes information about traumatic brain injury, research, treatment and rehabilitation services at CNS easily and quickly available on your iPhone or Android mobile device. Join over 35,000 other worldwide CNS Mobile app users.

App features include:
  • Information about traumatic brain injury
  • Information about brain function and deficits
  • Brain injury news and research updates
  • Educational videos
  • CNS Facebook and RSS interface
  • TBI Educational Products Store
  • Employment Opportunities
  • CNS facility photos
  • Information about rehabilitation services

The Story of Centre for Neuro Skills

Watch this video by award-winning documentary filmmaker Gandulf Hennig on how it all began and what inspires our commitment to being a leader in brain injury rehabilitation for over 30 years.  New!

CNS Innovations

A division of Centre for Neuro Skills, CNS Innovations is a postacute rehabilitation program that enhances the quality of life for patients, fosters new skills, provides education, and inspires hope. Now includes information in Spanish and Chinese langauges!
Programs include:
  • Assisted Living
  • Supported Living
  • Day Enrichment
  • Respite Services


Inside View

The Spring 2014 (23.2) issue of the Inside View quarterly newsletter is now available! With a $12 yearly subscription ($24 international), glossy, hard-copy versions of the Inside View will be delivered to your door every three months.
Two-year subscriptions are only $22 ($44 international) and three-year subscriptions are $30 ($60 international).
Two-year subscriptions are only $22 ($44 international) and three-year subscriptions are $30 ($60 international).
Table of Contents
  • Early Rehabilitation Important for Recovery After Severe Traumatic Brain Injury
  • Neural Prosthesis Restores Behavior After Brain Injury
  • How a Concussion Can lead to Depression Years Later
  • Brilliant "Blue G" May Shine in Treating Traumatic Brain Injuries
  • One Gene Influences Recovery from Traumatic Brain Injury
  • Researchers Model a Key Breaking Point Involved in Traumatic Brain Injury
  • 2014 Calendar of Events


Current News and Research

  • Menstrual phase as predictor of outcome after mild traumatic brain injury in women
  • Brainwave optimization associated with clinical improvements after traumatic brain injury
  • Contribution of psychological trauma to outcomes after traumatic brain injury
  • Girls suffer worse concussions, study suggests
  • Retrieval practice improves memory in survivors of severe traumatic brain injury
  • Head injuries can make children loners
  • Early trajectory of psychiatric symptoms after traumatic brain injury
  • 7 tricks to improve your memory
  • Head trauma sustained under the influence of alcohol is a predictor for future traumatic brain injury
  • Brain injury, memory and music studied
  • Clinical outcomes, predictors, and prevalence of anterior pituitary disorders following traumatic brain injury
  • Confronting secondary injuries from brain trauma
... and many, many more!


TBI Store

The TBI Resource Guide online store has over 80 brain injury related products, including educational multi-media cds, animations, graphics, e-books, newsletters, research article reprints, assessment tools, and laminated educational cards. The new educational multi-media cds provide an in-depth overview of brain injury, mild traumatic brain injury, and brain function. They include audio, video and graphic content in an easy-to-use self-learning format.

SCAT3 Assessment Now Available Online

The SCAT3 is a standardized tool for evaluating injured athletes for concussion and can be used in athletes aged from 13 years and older.


Continuing Education

The TBI Resource Guide offers four on-line, continuing education courses. Our courses are $60 each and certified for 2-hours.


Visit our CNS Career Center to learn about exciting employment opportunities at Centre for Neuro Skills rehabilitation programs in California and Texas.

Full-time positions:
  • Neuro-Rehabilitation Specialist (Dallas, Los Angeles, San Francisco)
  • Nurse (Dallas)
  • Speech Therapist (Bakersfield)
  • Transportation Driver (Dallas)
  • Quality Analyst (Bakersfield)
Per-diem positions:
  • Occupational Therapist (Dallas)
  • Physical Therapist (Dallas, Bakersfield)
  • Speech Therapist (Dallas, Bakersfield)


Traumatic Brain Injury Blog and RSS


Visit our new traumatic brain injury blog and subscribe to our RSS to keep up-to-date on the latest brain injury news, research, website changes and interactive commentary.

2014 Conference and Events Calendar

BIA of Alaska Annual Conference
Anchorage, AK
Rehabilitation of the Adult and Child with Traumatic Brain Injury: Practical Solutions to Real World Problems
5/1/2014 - 5/2/2014
Williamsburg, VA
703-451-8881 ext 224
BIA of Wisconsin Annual Conference
5/5/2014 - 5/6/2014
Wisconsin Dells, WI
Traumatic Brain Injury: Resources and Pathways to Recovery
Los Angeles, California
Scripps Brain Injury Rehabilitation Conference
San Diego, CA
Mayo Brain Injury Conference
5/19/2014 - 5/20/2014
Mayo Clinic, Rochester, Minnesota
* Please write us at cns@neuroskills.com if you would like your event listed in our newsletter and website

TBI Bookstore

Browse through the more than 300 brain injury related books in our TBI Bookstore. Search by author, keywords, categories or book titles and order online via our association with Amazon.com.
New Books:
TBI: Traumatic Brain Injury
More Information/order
Life Interrupted: A Mother's Story of Her Son's Traumatic Brain Injury
More Information/order
Neuropsychiatry of Traumatic Brain Injury
More Information/order
TBI: Traumatic Brain Injury
More Information/Order
Recognizing Brain Injury
More Information/Order
A One Percent Chance of Survival: A True Tale of Recovery from Traumatic Brain Injury
More Information/Order

That is all for this month. See you in May!
Craig S. Persel
Managing Editor, TBI Resource Guide
Centre for Neuro Skills
TBI E-Newsletter and TBI Resource Guide [ neuroskills.com and #neuroskills ]
are products of
Centre for Neuro Skills
Centre for Neuro Skills [ Brain Injury Rehabilitation ]
Los Angeles - Bakersfield - San Francisco - Dallas
For more information call 800.922.4994

New video about NFB's free slate and stylus program

Please see below for a video regarding the NFB's Free Slate program. A good weekend to all!
Eric Guillory, Director of Youth Services
Louisiana Center for the Blind
101 South Trenton Street
Ruston, LA 71270
Voice: 800-234-4166 (extension 3009)
Fax: 318-251-0109
Skype: brllovingdad

Dear Fellow Federationists:

As many of you know, the National Federation of the Blind is distributing free slates and styluses to blind people in the United States. In our new Youtube video, Dr. Maurer talks about this program. He discusses the usefulness of the slate and stylus­the original, and still most flexible and practical, Braille writing tool, and its importance to Braille literacy. Please share this video with everyone you know who uses Braille or is interested in using or learning the code­the key to success for blind children and adults. Here is the link to the video:

Please enjoy and share via e-mail, on your Facebook page or your Twitter feed, at NFB meetings and other gatherings of blind people, and in any other way you can imagine.


Chris Danielsen
Director of Public Relations
National Federation of the Blind

Christopher S. Danielsen, J.D.
Director of Public Relations
National Federation of the Blind
200 East Wells Street
Baltimore, MD 21230
Office: (410) 659-9314, extension 2330
Mobile: (410) 262-1281
E-mail: cdanielsen@nfb.org

The National Federation of the Blind knows that blindness is not the characteristic that defines you or your future. Every day we raise the expectations of blind people, because low expectations create obstacles between blind people and our dreams. You can live the life you want; blindness is not what holds you back.

To make a donation to the National Federation of the Blind Imagination Fund campaign, please visit www.nfb.org/ImaginingOurFuture.

Wednesday, May 7, 2014


The body clock is your natural timing mechanism, and for most people, sighted or blind, it runs a little longer than 24 hours. Thus, it's a non-24-hour clock. For some, it runs just a few minutes longer, and for others it runs much longer. The reason for this is not known.
For example, if your body clock is 24.5 hours, today you're running a half hour behind. Tomorrow you're an hour behind, and so on, until your natural rhythms have you sleeping during the day and awake at night. This continues and eventually your sleep-wake cycle briefly syncs up with the typical day-night cycle. Then it begins to move out of sync again. Some people experience a full circadian cycle as short as one and a half months. For others, it can be several months before their sleep-wake cycle is realigned with the 24-hour day.
The eye has two functions: to allow us to see images and to take in light. This light then signals the time of day to the brain. In people who are sighted, the non-24-hour master body clock is reset every day to 24 hours in the same way that hands on a clock can be reset. This ensures that the circadian rhythms synchronize to the typical day-night cycle.
For people who are totally blind, there are no such light cues. The body clock is left to run its natural course, with extra minutes adding up day by day until your circadian rhythms are essentially upside down from a typical 24-hour day.

For more information and support on this condition go to the official Non-24 web site at http://www.non-24.com/

Friday, April 11, 2014

BBC News - A watch for blind people (with Thanks to Eric Guillory)

MsKathyssLogo2.gif picture by mskathy0724

From: Eric Guillory To: Eric Guillory &Sent: Wednesday, April 9, 2014 10:20 AMSubject: BBC News - A watch for blind 


I've seen one of these timepieces and really like it. I plan to make it my Christmas/birthday present this year. There was a time when I used to wear a talking or glowing watch, but, as is true for using one's cell phone to check the time, these devices are not always practical. And, as much of a champion as I am of Braille literacy (I use Braille every day), the Braille watch just hasn't worked out well for me, as I am apparently too bombastic when checking the time and can accidentally move the hands. It is not inexpensive, but that is the case for any fashionable watch. I'm passing this along as an FYI for you/your students.
Eric Guillory, Director of Youth Services
Louisiana Center for the Blind
101 South Trenton Street
Ruston, LA 71270
Voice: 800-234-4166 (extension 3009)
Fax: 318-251-0109
Skype: brllovingdad
"Together, we are changing what it means to be blind."


American Council of the Blind
The American Council of the Blind is the nation's leading membership organization of blind and visually impaired people. It was founded in 1961 and incorporated in the District of Columbia.
Center for Applied Special Technology
CAST is an educational, not-for-profit organization that uses technology to expand opportunities for all people, including those with disabilities.

Learning Disabilities Association of America
The Learning Disabilities Association of
America is a national, non-profit organization whose purpose is to advance the education and general welfare of children and adults of normal or potentially normal intelligence who manifest disabilities of a perceptual, conceptual, or coordinative nature.
The National Federation of the Blind is a resource for the blind by the blind. The organization promotes education, independence, group and self advocacy. To subscribe to their publication THE BRAILLE MONITOR visit the web address at http://www.nfb.org or write:


Thursday, April 3, 2014

Could It Be Dyslexia?; Disability Versus Difference

National Center for Learning Disabilities

Visit LD.org

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Dear Kathy,

What does it mean if your child has trouble finding or saying the right word? Get the answer in this week's Three Things to Know, along with five essential skills for reading and one parent's take on disability versus difference.

Word Finding Word Retrieval Problems Trouble Finding the Right Word
"Can you pass me that… whatchamacallit?" Most of us have trouble now and then with finding the right word, a process called word retrieval. But children who experience this frequently can struggle in school and have anxiety. Find out how you can help.

Tweet Share

5 Essential Skills for Reading Comprehension Skills for Reading Comprehension
If your child struggles with reading, you want to know why. To help you, we put together this list of five essential skills needed for reading comprehension. Use the list to zero in on the challenges your child faces.

Tweet Share

What's the Right Term: Disorder, Disability or Difference? Disorder, Disability or Difference?
Parents are often bombarded with terms for how to describe their children's challenges. It is a "disorder" or a "disability"? What about a "learning difference"? A parent contributor shares her perspective on how the right word can often depend on context.

Tweet Share

I hope these three things help. Thanks for reading.

Andrew Lee
The NCLD Editorial Team

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381 Park Avenue South, Suite 1401 | New York, NY 10016
Ph: 212.545.7510 | Fax: 212.545.9665 | Toll-free: 888.575.7373
National Center for Learning Disabilities © 2014 All rights reserved.

NCLD is listed by the Internal Revenue Service as a 501(c)(3) nonprofit organization. All gifts made to NCLD are tax deductible to the fullest extent allowed by law.

Sunday, March 16, 2014

The Journal of Blindness Innovation and Research

The Journal of Blindness Innovation and Research (JBIR) is the first international, interdisciplinary open access journal created by blind people, parents, teachers, administrators, and academic researchers designed to further efforts to address the real problems of blindness.

JBIR is a multidisciplinary publication presenting primary research, scholarly reviews, and reports of innovative information and research related to the blind. JBIR strives to publish research and professional discourse that broadens and deepens our understanding about blindness and the best practices for increasing the independence, self-respect, self-determination, and potential of individuals who are blind. JBIR is not a medical journal and does not intend to publish information related to the medical aspects of blindness. Relevant topics may include but are not limited to: the education/rehabilitation of the blind, innovations related to Braille and the use of Braille, techniques and tools for independent movement and travel by the blind, development of innovative technological approaches, findings that can effect advocacy related efforts, analysis of data sets providing descriptive information about the blind, and innovative practices in preparing professionals and paraprofessionals to work with the blind.


Tuesday, March 11, 2014

Use of Indicator Dots

From: Eric Guillory 

Subject: Use of Indicator Dots

This link from Paths to Literacy takes an interesting approach to students marking answers.

Eric Guillory, Director of Youth Services
Louisiana Center for the Blind
101 South Trenton Street
Ruston, LA 71270
Voice: 800-234-4166 (extension 3009)
Fax: 318-251-0109
Skype: brllovingdad

"Together, we are changing what it means to be blind."

Monday, March 10, 2014

Association of Home Appliance Manufacturers

From: Gene Fleeman 

Hi everyone,
I've started the petition "Association of Home Appliance Manufacturers: Incorporate voice technology, audio queues, and/or tactile buttons into your flat panel appliances to make them accessible to the blind and those with low vision." Thanks to 500 supporters, the petition is off to a good start. But to really make a statement to the Appliance Manufacturers of how important this issue is to those with sight impairment, I need your support to make the number of signatures to grow exponentially! Lets join together to make our voices heard.
Thank you,

Will you take 30 seconds to sign it right now? Here's the link:


Here's why it's important:
I started this petition on Change.org, because of the perceived lack of demand, appliance manufacturers have been reluctant to build inexpensive voice/touch technology into their products, thereby making them inaccessible to the blind.  There are approximately seven million blind or low-vision people living in the United States today, and that number is growing every day, due to causes ranging from birth defects, diabetes, to combat injuries, etc.  We clean, do laundry, iron, sew, and travel independently. We are foodservice managers, attorneys, scientists and more.  And yet, when it comes to operating our touch panel home appliances we are practically helpless.  Why?, because appliance manufacturers refuse to incorporate inexpensive technology that already exists­such as those used in smartphones and iPads that make their flat panel appliances accessible to the blind.
By including audio cues, speech output, or tactile buttons, manufacturers will reduce the likelihood that a blind or sighted person will inadvertently touch a spot on a panel and turn on a burner without knowing it, potentially causing a fire or serious personal injury. Without accessible technology being offered to consumers, people who were once able to cook and clean independently could well find themselves unable to live alone in their own homes.
But it doesn’t have to be this way! If manufacturers incorporate inexpensive audio and/or tactile technology into their products, they will make a huge difference in the safety of the blind and others as well as the ability of the blind to continue to lead their lives independently, while simultaneously gaining thousands, if not millions, of newly satisfied customers. This is good for blind people who will remain independent; good for manufacturers who will sell products that the blind can use and that are safer for all who buy them; and good for society, which will not be asked to help normally competent human beings live in assisted living or nursing facilities simply because new appliances do not have displays they can read.
By signing our petition, you will be showing your support and telling the Association of Home Appliance Manufacturers to work in collaboration with the National Federation of the Blind to get their manufacturer members to incorporate these immeasurable improvements in the quality of life, convenience, and safety of the blind and those who are losing their vision.
Again thank you for your support,
Gene Fleeman
National Federation of the Blind

Tuesday, February 4, 2014

Two Kids, One Story About Support for Learning Differences - NCLD

Two Kids, One Story About Support for Learning Differences - NCLD

Watch this stop action animation created by Abhay Gulati. The video tells the story of two children, and the life-changuing difference the right support fromparnets can make.

I've had students over the years that I knew had learning differences. A few parents were reluctant to have their children evaluated for fear of the children being "labeled". Sometimes I could get help for these children by describing how they learn in their IEP and the methods that were best for them without listing a label. A good specialist "gotta do what a specialist gotta do!"

To see the video, click the hot link above.

When to Contact Your Child's Teachers: 3 Signs It's Time to Speak Up - NCLD

At a Glance

  • Frequent homework issues could be a sign of trouble at school.
  • A change in your child’s attitude about school could be another telltale sign.
  • Communicating your concerns early can sometimes head off bigger problems.
Have you ever wanted to call or email your child’s teacher but were
afraid of being a bother? Don’t worry! Gone are the days of waiting for a
parent-teacher conference, a PTA meeting or a chance meeting in the
school hallway to touch base with the teacher.

School websites,
social networks, email and texting have made it easier to stay in
contact. And communicating early can sometimes head off bigger problems
and enable you to build a solid relationship with the school.

Here are three situations when it’s wise to reach out: [This article continues at the Learning Disablities site at the link below]

When to Contact Your Child's Teachers: 3 Signs It's Time to Speak Up - NCLD

Saturday, February 1, 2014

Philadelphia Salon Hosting Fundraiser For Indonesian Child With Rare Cancer

By Chelsea Karnash of CBS Philly 
[Source Link: http://philadelphia.cbslocal.com/2014/01/29/philadelphia-salon-hosting-fundraiser-for-indonesian-child-with-rare-cancer/]

PHILADELPHIA (CBS) – A little boy is fighting for his life, and one local salon is trying to help.
Pieter, a two-year-old from Indonesia, is battling a rare form of eye cancer called bilateral sporadic retinoblastoma. The cancer already caused him to lose his left eye shortly after birth; now, the disease has reappeared in his right eye.

Luckily for Pieter, his parents were able to bring him to the United States to undergo treatment at Philadelphia’s Wills Eye Institute. Unfortunately, they had to sell their home in Indonesia and use most of their savings to pay for that treatment – over $50,000, with almost $25,000 more still needed to finish Pieter’s treatment.

That’s where Laurentius Purnama, owner of Philadelphia’s well-known Laurentius Salon and a native of Indonesia himself, comes in.

Purnama, who met Pieter and his family at the Church St. Thomas Aquinas in South Philadelphia where his son, Jude, goes to Sunday School, was touched by the family’s story and decided he wanted to host an event to help fund the boy’s treatment.

On Sunday, February 9th, Laurentius Salon will be donating the entire day’s proceeds to Pieter’s family so that they can continue his treatment here in Philadelphia. Customers can make an appointment for any service – cut, color, blowouts, manicures and pedicures – and the cost will go towards Pieter’s battle with cancer.

Additionally, Laurentius will host a silent auction for several mint condition designer handbags, including a Louis Vuitton Mary Kate bag and an Yves Saint Laurent Mombasa bag, as well as other great prizes.

For those unable to attend the one-day fundraiser, Laurentius has also set up a kickstarter fund for Pieter and his family.

“No donation is too small, and each and every donation adds one more ray of hope for Pieter,” the page says.

So far, online donors have contributed nearly $13,000, but more is still necessary to ensure Pieter is able to continue receiving treatment.

“If it’s determined on February 5th that Pieter needs additional treatment, or if another retinoblastoma appears,” Purnama writes, “Pieter’s family has no more options.”

To donate to Pieter’s cause online, visit: www.gofundme.com/6c11os. Or, to make an appointment for the Feb. 9th fundraiser at Laurentius Salon, visit: http://laurentiussalon.com/contact-us.