Batten's is a horrible disease. I've had about five students with this condition over the years. I seem to find many articles about children with it from the UK.
This story is about a grandmom raising money and awareness about Batten's Disease.
~K ** Sensory room hope for Amelia **
A Nottinghamshire grandmother is raising money for a "sensory room" for her three-year-old granddaughter, who is not expected to live beyond her eighth birthday
< http://www.bbc.co.uk/go/em/fr/-/news/uk-england-nottinghamshire-20294114 >
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