Tuesday, March 16, 2010

A Legacy For and Beyond Batten Disease - Bio-IT World

Batten's disease is a horrible thing to watch your children go through. I have had at least five students with this conditon that I know of. It may have been fortunate that a couple of them had the infantile type and that they were severely cognitvely impaired from birth and not aware of their condition. However, three of them had the later onset juvenile type of Batten's and were aware of the differences in their abilities and health as the disease progressed. I did not want to know until years later when they had passed. Those same three were included among the "Faces of Batten's" on the national foundation web site.

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