Club for DeafBlind to Start Up

Kathy stopped by Essex County Standard website and suggested that you visit the following URL:
http://www.essexcountystandard.co.uk/news/localnews/10075200.Heybridge__Deafblind_club_to_start_up/?ref=erec
They added:

Kind regards
Essex County Standard Team.

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Deafblind Community Gets Connected

http://www.webwire.com/ViewPressRel.asp?aId=166026

Visual Impairments Specialist Scotlandville Magnet High School of Excellence http://lee.ebrschools.org/kathynicholslee
http://www.kathyskids.org
http://teacherweb.com/LA/RobertELeeHigh/MrsMichael/t.aspx
http://mskathyskids.blogspot.com

Deafblindness Slide Show

http://www.slideshare.net/cde0830/deafblindness

fundraiser for deafblind

Huddersfield University Marathon Band is fundraising for Sense ...
Sense is the UK's largest organisation offering support to deafblind people and their families. Established in 1955 as a parent's support group, ...
http://www.google.com/url?sa=X&q=http://www.justgiving.com/Phillip-McCann&ct=ga&cad=:s7:f2:v0:d1:i1:ld:e1:p1:t1287570168:&cd=e-VKczEeG0I&usg=AFQjCNGcSBoHspAMky_gJf77RCfDp3JWAw

Visual Impairments Specialist
WESchool
http://lee.ebrschools.org/kathynicholslee
http://www.kathyskids.org
http://teacherweb.com/LA/RobertELeeHigh/MrsMichael/t.aspx
http://mskathyskids.blogspot.com

Adessi Faith Day Being Held for Deaf-Blind

http://finance.yahoo.com/news/Adessi-Faith-Day-Being-Held-bw-458935784.html?x=0&.v=1

Sisters battle to keep their hearing, sight

* Please note, the sender's email address has not been verified.       You have received the following link from knl@ebrschools.org:             Click the following to access the sent link:       Sisters battle to keep their hearing, sight*                 Get your EMAIL THIS Browser Button and use it to email content from any Web site. Click here for more information.   *This article can also be accessed if you copy and paste the entire address below into your web browser. http://www.mysanantonio.com/life/Sisters_battle_to_keep_their_hearing_sight_.html?showFullArticle=y

Usher's Syndrome: http://tlc.ac.nz/newsletter/archive/tag/usher%E2%80%99s-syndrome/

A Blessing in Disguise:

http://tlc.ac.nz/newsletter/archive/tag/usher%E2%80%99s-syndrome/

Ms. K
Visual Impairments Specialist

http://lee.ebrschools.org/kathynicholslee
http://www.kathyskids.org

http://mskathyskids.blogspot.com

Third Sector Jobs: Email a Friend Job Alert

I found this job on the Third Sector Jobs website and thought you might be interested.

Welcome to Third Sector Jobs. The following vacancy as been recommended to you:

Job title: Holidays Co-ordinator
Recruiter: Sense
Description:
Could you run a holiday programme for deafblind people and manage a complex project with paid and voluntary staff?

To view this job, please click on the link below:
http://jobs.thirdsector.co.uk/job/329440/holidays-co-ordinator/?TrackID=1987

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Questions?
Email us by visiting http://jobs.thirdsector.co.uk/staticpages/600/contact-us

deafblind community on facebook

Deafblindness | Facebook
Welcome to the Facebook Community Page about Deafblindness, a collection of shared knowledge concerning Deafblindness.
ko-kr.facebook.com/pages/.../107666589263303?v=wall...0

Visual Impairments Specialist
Westminster Elementary School
http://lee.ebrschools.org/kathynicholslee
http://www.kathyskids.org
http://teacherweb.com/LA/RobertELeeHigh/MrsMichael/t.aspx
http://mskathyskids.blogspot.com

Kerry to chair hearing on improving Web access for deaf, blind

This is an e-mail from TheHill.com (http://TheHill.com) sent by Ms. Kathy's Blog . You may find the following link interesting: http://thehill.com/blogs/hillicon-valley/technology/98863-sen-kerry-to-chair-hearing-on-improving-web-access-for-deaf-blind

Deafblind Resources

http://www.pdfgeni.com/book/Deaf-Blind-pdf.html

hamilton-relay-helps-california-address-deaf-blind-speech-disabled-requirements

The original URL of this page is:
http://www.tmcnet.com/voip/0410/hamilton-relay-helps-california-address-deaf-blind-speech-disabled-requirements.htm

Message from sender:
news
-------------------------

 Hamilton Relay Helps California Address Deaf, Blind, Speech-Disabled RequirementsBy Paula BernierThrough a new contract with the State of California, Hamilton Relay starting this summer will provide free telecommunications services that make telephone connections possible between people who are deaf, hard of hearing, deaf-blind or speech disabled and people who use standard phones. In some cases, special equipment is required to access the service, and the State of California relies on a separate contractor for the provision of that equipment. INTERNET TELEPHONY recently interviewed Anne Girard, director of marketing at Hamilton Relay, about the deployment.What will Hamilton Relay's solution allow the State of California to offer that it couldn't before?Girard: As outlined in the new contract, there is an increased focus on outreach, customer education and service use training for speech-to-speech customers. In addition, there are enhanced customer preference options including customized greetings, the ability to simply provide communication assistants with a name and/or unique identifier for dialing purposes and specialized deaf blind preference options.How, if at all, will the new State of California system compare with relay systems in use in other states around the country?Girard: Telephone relay service has been available in the State of California as well as all 50 states as a result of the Americans with Disabilities Act passed into law in 1990, and further developed in 1994 to include the provision of relay service. Relay in California is unique in that it allows users of the service to select a provider. This choice is only available to customers of the California Relay Service.What role, if any, does IP technology play in this?Girard: Outside of the California Relay Service contract, Hamilton Relay provides Internet Relay services nationwide, which are based on IP technology.Power and Cooling Capacity Management for Data Centers Learn more, download free white paper.Deploying High-Density Zones in a Low-Density Data Center Learn more, download free white paper.Selecting an Industry-Standard Metric for Data Center Efficiency Learn more, download free white paper.Preventing Data Corruption in the Event of an Extended Power Outage Learn more, download free white paper.Guidance for calculation of efficiency (PUE) in real data centers Learn more, download free white paper.Implementing Energy Efficient Data Centers Learn more, download free white paper.Cooling Strategies for Ultra-High Density Racks and Blade Servers Learn more, download free white paper. What types of endpoints will hearing-impaired people require to use this system?Girard: In some cases, special equipment is required to access relay service. The California Equipment Distribution program, managed by a separate contractor, facilitates the provisioning of that equipment.What new technology trends are we seeing in telecommunications relay services, and how is Hamilton Telecommunications addressing them?Girard: Outside of traditional relay, [which] is state-based, the FCC (News - Alert) oversees the provision of video relay and Internet relay on a national level. These technologies are certainly a result of the latest advancements of the communication industry as whole. IT » Internet Telephony Magazine Table of Contents

Deaf-Blind Runners Prove They are Like Anybody Else

http://www.newsleader.com/article/20100406/SPORTS/4060323/Deaf-blind-runners-prove-they-re-just-like-anyone-else

BBC E-mail: Disabled girl abandoned overnight

I saw this story on the BBC News website.

** Disabled girl abandoned overnight **
A babysitter admits abandoning a deaf and blind six-year-old outside in her pram overnight after a fireworks party.
< http://news.bbc.co.uk/go/em/fr/-/2/hi/uk_news/scotland/glasgow_and_west/8618305.stm >

Usher's Syndrome: Growing Up with a Deaf-Blind Mom

An article by a lady who grew up with a mom who has Usher's Syndrome.
http://www.associatedcontent.com/article/175828/ushers_syndrome_growing_up_with_a_deaf.html?cat=60

Deafblind Pianist

The DeafBlind's Musing: Deaf Pianist to attend Ragtime Festival
By Patty Keen
The DeafBlind\. Saturday, April 10, 2010. Deaf Pianist to attend Ragtime Festival. It's a rarity. A juxtaposition. An oxymoron. An unique hobby and for someone to be quite skilled at this one too as well; I admire this. ...
The DeafBlind's Musing - http://thedeafblindsmusing.blogspot.com/

Check out the American Association of the Deaf-Blind website!

A message from kathy
American Association ofthe Blind web site.
Please visit American Association of the Deaf-Blind today!
If the text above does not appear as a clickable link, you can visit the web address:
http://www.aadb.org/information/ssp/ssp_stories/ssp_eleanora_albasini.html?s_oo=btICZ5N7noGCJsFF0VBbUw..

Usher Syndrome: A Genetic Disorder that Effects Vision, Hearing and Balance

http://www.associatedcontent.com/article/2812568/usher_syndrome_a_genetic_disorder_that.html?cat=70

Usher's Syndrome

 By lmg on March 23rd, 2010
Facts About Usher Syndrome
Usher syndrome is a genetic condition that effects hearing, sight and balance.

Usher syndrome is an inherited condition in which a child is born deaf
or with hearing loss, and progressively loses their vision due to a
group of hereditary diseases of the retina, known as Retinitis
Pigmentosa, or RP. With RP, the retina degenerates slowly and loses its
ability to send pictures to the brain. For Usher Syndrome to be present,
both conditions must be present and they must be caused by a single
gene. Usher syndrome effects approximately 3 to 6 percent of all deaf
children and it is believed to affect an equal number of children who
are hard of hearing. Usher syndrome, itself, is more than one genetic
condition. It is estimated that 1 in 10,000 adults have Usher syndrome
of one type or another, and approximately 4 out of every 100,000 babies
born have Usher syndrome.
Usher syndrome is an inherited disease. This means that it is passed
from parent to child. In order for a child to be born with Usher
syndrome, both parents must be carriers of the gene. If only one parent
is a carrier, the child will not have the disease, however; if both
parents carry the gene, there is a 25% chance that the child will have
the disease, a 50% chance that the child will be a carrier of the
disease, and a 25% chance that the child will neither have the disease
nor be a carrier.
There are three types of Usher syndrome. Types 1 and 2 are most common
in the United States. It is estimated that 90 to 95 percent of all cases
of Usher syndrome in the United States are either type 1 or type 2.
Read more in Conditions and Diseases
« Facts About Klinefelter SyndromeFacts About Tay-sachs Disease »Those
who are affected with type 1 Usher syndrome are deaf at birth and have
severe problems with balance. These children experience little to no
benefit from the use of hearing aids. Night blindness is present in
infancy or early childhood. By late childhood or early teens, blind
spots in the person's vision begin to appear. By early adulthood, the
person is legally blind. Children with type 1 Usher syndrome are
generally slow to sit without support and rarely walk independently
before the age of 18 months.
Those who are affected with type 2 Usher syndrome are born with moderate
to severe hearing loss and normal balance. Night blindness begins in
late childhood or early teenage years. By late teenage or early
adulthood years, blind spots begin to appear in the person's vision. The
person becomes legally blind in early to mid adulthood years. Children
affected with type 2 Usher syndrome generally benefit from the use of
hearing aids and have the ability to communicate orally. Vision problems
progress more slowly than in type 1 Usher syndrome and the onset of
Retinitis Pigmentosa is often not apparent until teenage years.
Those affected with type 3 Usher syndrome are born with normal hearing
at birth. They progressively lose their hearing in their childhood or
early teenage years. Hearing loss, once it begins, tends to progress
rapidly, over a 10 to 15 year period, until hearing loss is profound.
Balance problems vary in severity, but often progresses with age. The
rate at which hearing and vision are lost varies from person to person,
even within families where more than one person is affected. Night
blindness normally begins during puberty. By the late teen to early
adulthood age, blind spots begin to appear in the person's vision. By
mid-adulthood years, the person may become legally blind.
Usher syndrome effects hearing, vision and balance. Because of this,
diagnosis of the disorder includes testing of all three. Visual field
tests to determine the person's peripheral vision, an ERG, or
electroretinogram is performed to measure the electrical responses of
the light-sensitive cells within the eye, and an examination of the
retina and other parts in the back of the eye to determine any
abnormalities are all tests done to hearing test is performed to determine how loud sounds need to be in a
specific frequency before the person hears them. This helps to monitor
and determine any hearing loss. To test the person's balance, an ENG, or
electronystagmogram is performed to measure any involuntary eye
movements.
There is currently no cure for Usher syndrome. Early detection is best
for helping those affected learn how to cope with this disorder. There
are many educational programs available to help. Typical treatment will
include hearing aids, cochlear implants, assisted listening devices
and/or other communication methods, including the teaching of sign
language. Other services are available to help teach the affected person
how to communicate with others to the best of their ability, retain
mobility, live as independently as possible, read by using Braille, as
well as other low-vision services and auditory training.
Some ophthalmologists believe that a high dose of Vitamin A palmitate
may slow the progression of vision loss due to Retinitis Pigmentosa.
Because of this, some ophthalmologists will recommend a daily supplement
of Vitamin A palmitate at the dosage of 15,000 IU daily. Those who use
this form of treatment should be careful not to exceed the daily dose.
It is important to note that this treatment is not recommended for those
with type 1 Usher syndrome. Some guidelines are in place for those who
use this type of treatment. These guidelines include not substituting
Vitamin A palmitate with a beta-carotene supplement, not taking more
than the recommended dosage, women who are using this treatment should
stop treatment three months before trying to conceive a child due to the
increased risk of birth defects, and women who are pregnant should stop
this treatment due to the risk of birth defects. In addition to these
guidelines, a person using this treatment should not consume more than
400 IU of Vitamin E each day.
Usher disease, although not fatal, can be very debilitating for those
who are affected. Early diagnosis along with education and training can
help those individuals live a more productive and independent life. The
sooner the disorder is diagnosed, the sooner treatment can begin. If you
suspect that your child may be affected by Usher syndrome, the best
thing you can do is seek a medical opinion.
Sources for this article include:
http://www.deafblind.com/usher.htmlhttp://www.dbproject.mm.org/ushersyndrome.htmlhttp://www.medicinenet.com/script/main/art.asp?articlekey=16228&pf=3&page=1

Another Usher's Syndrome Blog

http://ushersyndromeblog.blogspot.com/