Showing posts with label albinism. Show all posts
Showing posts with label albinism. Show all posts

Saturday, March 31, 2012

Menu Complaints Served Up (The Province)

http://www.theprovince.com/health/Menu+complaints+served/6371074/story.html

Source:
The Province (http://www.theprovince.com)

Pair Claims Discrimination over Restaurant Chain's "Albino Rhino Beer"( canada.com)

http://www.canada.com/Restaurant+chain+albino+rhino+discriminatory+pair+claim/6369292/story.html

Source Link from:
Canada.com (http://www.canada.com)

Albino Rhino Beer Complaint (Victoria Times Colonist)

http://www.timescolonist.com/business/Albino+rhino+prompts+complaint/6371306/story.html

Perhap they forgot that there are animals with albinism as well. Maybe this is their way of calling attention to the condition as the protest makes no sense otherwise, IMHO. Come on! ~K


_______________________________________
This is a free service courtesy of
The Victoria Times Colonist (http://www.timescolonist.com)

Albino Beer Draws Complaint




Perhaps it's gone a bit far. ~K
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'Albino' beer name draws complaint

Furor over albino rhino beer has me stampeding for common sense


Furor over albino rhino beer has me stampeding for common sense
Peter Ash and Ikponwosa Ero have no doubt convinced themselves that they're doing the right thing by trying to pour Earls Restaurant's albino rhino beer down the drain.
 

Monday, March 26, 2012

DNA - Sportsperson crosses all hurdles with ‘I can’ spirit

Sportsperson crosses all hurdles with 'I can' spirit

Vaishali Salavkar wears several hats with ease — chess champion, half-marathon runner and professional masseuse. And between all this, she has managed to find time to raise a 12-year-old daughter.
That Vaishali is partially visually challenged is one of the many things that makes her an inspiration for many.
She recently won her sixth national blind chess title and now plans to take advanced coaching so that she can play against sighted opponents. "A few months training and I am sure I can do it," she says.
It is this ‘’I Can" spirit that has egged her on to achieve commendable personal and professional goals.
Vaishali has a skin condition called albinism which makes her melanin-deficient and partially sighted. "I can’t see anything from my right eye and the left can only make out shapes, not faces, unless they are really close," she adds.
Growing up in a society which is not necessarily sensitive to the needs of the differently-abled, Vaishali struggled for years to fit in. One of the teachers at her school saw a spark in Vaishali and taught her to play chess as an extracurricular activity. "I beat him at a game and there has been no looking back since," she says.
The 40-year-old loves to jog and has also participated in the 7km Dream Run and the 21km half marathon a couple of times along with her husband Narendra and other members of the National Association of the Blind.
"A lot of physically challenged people take up activities that are perceived to be difficult or beyond their reach. For me, the loud cheers and encouragement from the viewers and fellow participants are exhilarating," Vaishali says.
She and her husband keep fit by brisk walking and light jogging. The couple is helped in their regime by their daughter Tanvi. "When Tanvi was born, I couldn’t help but wonder if I would be able to take care of her or whether sightless parents can bring up a well-adjusted child," she says.
And when Vaishali started playing chess in 1999, she was worried whether she would be able to juggle her job and parenthood with her passion for the game. "But I have managed to do all that is important to me with sheer determination on my part and a lot of help from my husband," she adds.

Ooyala: World's Largest Family with Albinism Video

Hello,
Ms. Kathy has sent you a video on Ooyala.
To view the video, please click the link below:
http://www.thesun.co.uk/sol/homepage/video/sun-exclusive/4174671/Albino-Indians-Exclusive.html#ooid=9qNGVvMzo7k54oR3JGw-BVFsGU91oIvT

Wednesday, March 7, 2012

Tuesday, February 21, 2012

How I’m Coming to Terms With the Genetic Condition I May Have Passed to My Son

efore having children, the farthest I thought about genetics was assumptions on whose eye color my children would have or whether they would get my nose, or my husbands hands. I thought of the word “hereditary” in relation to characteristics, not in regards to diseases, illnesses and conditions.
But a quick google search after Arlo’s diagnosis of Ocular Albinism at 3 months old led me to the words “x-linked hereditary” — meaning it is most commonly passed from mother to son. I felt a knot forming in my throat as I read that the gene can be passed from generation to generation before it presents itself in a member of a family. It also meant that if I carried the OA gene, there was a 50% chance that any son we had would also have the condition.
I gave him this, I thought my eyes burning with tears. I felt dirty, betrayed by my genetic makeup, angry that this wonky gene had layed quietly inside me and now I had passed it to my son. I was ashamed of it, mostly because I didn’t understand albinism yet. I was so fearful of the unknown.
Six months since his initial diagnosis, my mindset around albinism has changed drastically. I’ve discovered that first and foremost, albinism is nothing to fear. As far as chromosomal abnormalities go, it’s a pretty mild one. It doesn’t effect his life span, his bodily functions (save for his vision to some extent, bit there are a lot of resources to help him there) and it does not cause him pain. Arlo is also fortunate in that he does have some pigmentation, so most people are not even aware that he has it.


[For the rest of the story follow this source link: http://blogs.babble.com/babys-first-year-blog/2012/02/21/how-im-coming-to-terms-with-the-genetic-condition-i-may-have-passed-to-my-son/]

Monday, February 6, 2012

Thursday, January 19, 2012

African-Americans with Albinism Support

I need--not for me but for my students--some support in the form of mentorship for my students of African-American descent with albinism from adults with the same condition. I'm calling on all of you who know me and for those who don't who would like to mentor these children. Our children of African heritage have special concerns and issues beyond the physical.
Thanks in advance!
Visual Impairments Specialist Scotlandville Elementary http://lee.ebrschools.org/kathynicholslee
http://www.kathyskids.org
http://teacherweb.com/LA/RobertELeeHigh/MrsMichael/t.aspx
http://mskathyskids.blogspot.com

Thursday, December 1, 2011

Alumna offers tool for understanding albinism


MsK
sent this using ShareThis.


Alumna offers tool for understanding albinism
Source: niutoday.info

Albinism. Some have heard the word before, but few people fully understand the difficulties a person with albinism faces. Individuals with albini...