BBC Story: Sensory room hope for Amelia

Batten's is a horrible disease. I've had about five students with this condition over the years. I seem to find many articles about children with it from the UK. 

This story is about a grandmom raising money and awareness about Batten's Disease.

~K

** Sensory room hope for Amelia **
A Nottinghamshire grandmother is raising money for a "sensory room" for her three-year-old granddaughter, who is not expected to live beyond her eighth birthday
< http://www.bbc.co.uk/go/em/fr/-/news/uk-england-nottinghamshire-20294114 >

** BBC Daily E-mail **
Choose the news and sport headlines you want - when you want them, all
in one daily e-mail
< http://www.bbc.co.uk/email >

Family carers entitled to pay (Batten's Disease)

Ms. Kathy thought you might like to read the following story on Stuff.co.nz.
Family carers entitled to pay
It's a fulltime job for someone like Ra Timms to look after her daughter, Jordyn Rose, who has Batten disease. ... Read More
http://www.stuff.co.nz/timaru-herald/news/6920738/Family-carers-entitled-to-pay

Batten's Disease

http://tasteofcountry.com/keith-urban-jack-ingram-you-look-so-good-in-love-cover/

Batten's Disease: MOney for Austin

http://austin.culturemap.com/newsdetail/02-06-12-21-38-keith-urban-lends-talents-to-raise-money-for-austin-based-foundation-aimed-at-curing-rare-genetic-disease-affecti/

Batten's Disease: Community Turns Out for Hugs and Wishes

Ms. Kathy  has shared the following article from Shorewood Patch:
	Community Turns out for Hugs and Wishes Annual fundraiser for Shorewood H.U.G.S. has record turnout Saturday.... By Dawn Aulet I thought you might be interested in this article from the Shorewood Patch. Read more »

Visit Patch.com for more local news, reviews, and info.
If you're not a member of Patch yet, sign up now!
Home | News | Events | Places | Traffic & Gas | Gallery | Marketplace | Volunteer
Copyright © 2012 Patch. All Rights Reserved.

Arlington public safety hockey game on Saturday to benefit Batten disease sufferer http://blogs.star-telegram.com/crime_time/2012/01/arlington-public-safety-hockey-game-on-saturday-to-benefit-batten-disease-sufferer--1.html

http://blogs.star-telegram.com/crime_time/2012/01/arlington-public-safety-hockey-game-on-saturday-to-benefit-batten-disease-sufferer--1.html

 

Batten's Disease

http://tasteofcountry.com/keith-urban-new-song-for-you-act-of-valor/

http://mskathyskids.blogspot.com

My girls could be dead before they're 12 - we have to make the most of every day! - mirror.co.uk

http://www.mirror.co.uk/life-style/real-life/2012/01/13/my-girls-could-be-dead-before-they-re-12-we-have-to-make-the-most-of-every-day-115875-23696670/#.TxCqcodgY3M.email
---

Batten's Disease: Children's Hospital Celebrates First Year of Discoveries

http://www.prnewswire.com/news-releases/the-jan-and-dan-duncan-neurological-research-institute-at-texas-childrens-hospital-celebrates-first-year-of-discoveries-136929078.html

Country singer joins Austin dad's effort in finding cure for disease | kvue.com Austin

Country singer joins Austin dad's effort in finding cure for disease | kvue.com Austin* http://www.kvue.com/entertainment/Country-music-superstar-helps-dad-find-cure-for-deadly-disease-137282158.html

Neighbors Come Together to Light Up Randall Park Neighborhood, Raise Funds — Downers Grove news, photos and events — TribLocal.com

http://triblocal.com/downers-grove/community/stories/2011/12/neighbors-come-together-to-light-up-randall-park-neighborhood-raise-funds/#.TvIwApmqbJk.email

Batten's Disease

News 1 new result for Batten's Disease

Special award for fundraiser Matt Tavistock People Money raised goes to the Huntington's Disease Association, Parkinson's UK and the Batten Disease Family Association which all work with conditions which ...

Austin mom's foundation helps parents with sick kids | kvue.com Austin

Powered by    * Please note, the sender's email address has not been verified. You have received the following link from mskathy Click the following to access the sent link: Austin mom's foundation helps parents with sick kids | kvue.com Austin* Get your EMAIL THIS Browser Button and use it to email content from any Web site. Click here for more information. *This article can also be accessed if you copy and paste the entire address below into your web browser. http://www.kvue.com/news/Austin-mom-spreading-message-to--132708943.html

Lakeshore update--Batten's Disease

Article Title:
Lakeshore update To view the contents on http://www.htrnews.com/, go to:
http://www.htrnews.com/apps/pbcs.dll/article?AID=/201105100412/MAN0101/105100493

Boy to Travel From Ireland to US to Treat Batten's Disease

In Short
A round-up of today's other stories in brief
http://www.irishtimes.com/newspaper/ireland/2011/0301/1224291080672.html
-----------------------------------------------------------------------
Comments:

-----------------------------------------------------------------------
Sent from IP :

Herald.ie: Brave little Liam undergoes pioneering brain surgery in NY

Brave little Liam undergoes pioneering brain surgery in NY
http://www.herald.ie/national-news/brave-little-liam-undergoes-pioneering-brain-surgery-in-ny-2635580.html
LITTLE Liam Heffernan will undergo serious brain surgery today in a New York hospital in his battle against Battens Disease.
---------------------------------------------------------

Knowledge Safari: Batten's Disease

http://ksafari.blogspot.com/2010/08/friday-facts-batten-disease.html

Man on Jogging Journey for Batten's

http://www.yumasun.com/news/disease-68423-coughlan-batten.html

Visual Impairments Specialist
Westminster Elementary School
http://lee.ebrschools.org/kathynicholslee
http://www.kathyskids.org
http://teacherweb.com/LA/RobertELeeHigh/MrsMichael/t.aspx
http://mskathyskids.blogspot.com

Vote VanHoutan's!!

http://drivingthemidwest.com/meet-the-our-town-our-heroes-finalists/

Go to the link above and help this family win. They have a child with Batten's and they are in the finalist position.

Batten's Disease Org of UK newsletter

http://bdfa-uk.org.uk/BDFA%20Spring%202011%20Batten%20Bulletin%20website%20version-1.pdf